My name is Rachel and I am saddened to say that my mother has Amyotrophic lateral sclerosis, also known as ALS or Lou Gehrig’s disease. It is a rapidly progressive and fatal disease and no cure has yet been found. She was diagnosed with this horrendous disease three years ago and it is still a daily struggle to come to terms with it all. As the disease progresses and I watch my mother slowly slip away, I can’t help but feel completely and utterly helpless. So, last year I decided to take action and register for the “Walk for ALS” event. I was hoping that it would give me a sense of helping my mother and other PALS (people with ALS) in some way. Thanks to so many generous sponsors, I was able to raise close to $2000 that went towards research for a cure and to help improve the lives of those affected by ALS (providing support, care, equipment, etc.). You know, I have to say, taking part in the event not only felt amazing to know that I helped raise money for a great cause, but it felt great to be a part of a community of people who could relate to each other in some way and who shared the same goal.
A year later, and I’m excited to say that I’ve registered for the “Walk for ALS” event again, and I’m really hoping that it can be as successful as last year. But in all honesty, I still find myself wanting to do more…which brings me to the purpose of this blog:
Initially, my idea to create a blog was to add a personal touch to the “Walk for ALS” fundraiser, while creating a space to tell my mom’s story. I wanted to give people who may not know much about ALS a chance to peek into someone’s life battling with this relentless disease. And so I began working on the idea of starting a blog. It wasn’t long until I started looking online to see if other people had written blogs about ALS and their experiences. What I found was a small community of people, complete strangers for that matter, offering support and sharing their stories. Instantly, I felt as though I also wanted to reach out and be a part of that community. So it got me thinking….the whole purpose of the “Walk for ALS” event is to not only raise funds for research and to offer people affected with ALS support of all kinds, but it’s also meant to raise awareness. And so I figured, maybe I could create a blog that would offer comprehensive information about ALS, explain where and how funds are allocated, and ultimately to offer a means to connect people both from within and outside the ALS community. I’m hoping that I can create a space where people can share their comments or stories, or even perhaps offer someone who happens to fall upon this site a sense of “not being alone”, a place where others can either relate to them or offer support.
And so I invite you to check out the other pages on this blog, share your story (or this link), or simply comment. As mentioned before this is my first blog and it is a work in progress (suggestions welcomed), but I will try to maintain the site best as I can by adding content and updates as we go.
Hope you enjoy,
The event- ALS walk: May 25th 2013
This will be my second year participating in the “Walk for ALS” event. Last year, the walk in which I took part in raised $102,697.24, which is incredible!
So this year I didn’t even hesitate to register again. I really hope I can attain my goal to raise at least $2000, but I need your help for that. At the bottom of each page of the blog is a “sponsor me/donate” icon. Clicking on this will link you to my “sponsor me” page on the ALS Society website, where you can make a donation.
By supporting the ALS Society, you will be contributing to a worthy cause who’s aim is to keep the hope alive of finding a cure. The money raised will go towards funding research programs as well as to provide quality services to improve the quality of life of those affected by ALS (equipment loan programs, care, etc.).
Thank you to all those who offer support and help!